Friday, August 27, 2010

Happy for some relief

The past couple days have been awesome, with some minor pain but nothing I could not work through. It is giving me hope that the meds are starting to work. I have read a lot about the MTX and once I read that it was a chemo drug it kinda scared me but the docs informed me that without meds I would most likely be paralyzed by the age of 50. So it is really one of those things were you don't have much of a choice. Anyways today was my second round of mtx I didnot get sick at my stomach but I did have some minor stomach cramps and chronic fatigue. I tried to fight to stay awake but I lost that battle thank god I was at my moms when it hit but it only lasted for about 30 mins and then I got woke back up pretty good. Anyways I came home and enjoyed an evening with my husband and oldest child, the baby stayed all night with my mom. We sat at the table together helping him with his homework and I kept thinking about how lucky I was that my hands were not sore and I could help him.These small things that I never would have thought about cross my mind often now. But I hope that meds keep working and through the grace of god I bet this RA. Because I am  not going to give up I am going to keep living the way I want to live....

Wednesday, August 25, 2010

Enjoying daily life through the pain

well last night I got up with my 4 month old three times, each time having to work my hands and they were so achy but had no choice I had to bare the pain and feed my baby. Then I awoke an hour earlier this morning so I could shower in hot water hoping tohelp my joints before my baby woke up again and before getting my 4 year old up for school. But I decided last night after praying, that I am going to do my daily life the same as if I did not have this RA. I know it hurts me really bad at times, but I am not going to give up and miss out on these precious moments with my kids and husband. So this morning I started my day off earlier and ended up working out alright, my 4 year old woke up on his own at 7 and I got his juice and cartoons on, then my 4 month old woke up so I changed his diaper and dried my hair while standing beside him on the changing table. He loves the hair dyer so I would blow it on his hair a little and he would just laugh. Once this was done I moved him to his little seat and made my other son pancakes by request for breakfast, while he was eating I fed my baby his cereal . Then both got done around same time, I gave the baby some toys and helped my 4 year old get dressed and we talked about what we were going to make for dinner. We decided that he is going to help me make pigs in the blanket for dinner tonight with green beans and mashed potato's. I pray that my hands ease up before time to go get him from school today. The hardest part about picking him up is snapping the baby in his carseat and getting him out and packing him in to pick the 4 year old up. I know this normally is a really easy task but when your hands don;t work right and your muscles are really weak this becomes very hard for me. Like right now I am typing with odd fingers because some of them will not bend right. Well anyways the main point of my blog is to kinda vent out daily things I enjoy and struggle with, but like I said before I am not giving up and I am still going to do everything I want even if it means I have to do it with pain.. 

Monday, August 23, 2010

Bad Bad Day

Well I had a really bad day yesterday, I woke up sore head to toe I barely could move around but I am set on not letting this thing get me down so  we stopped at the park and let logan play while feeding logan. I really enjoyed it, its so funny how much more I appreciate the small things. So a lot of good can always come out of something bad. Today has been a great day, I woke up not so sore, praying for more days like this!

Saturday, August 21, 2010

Rough Night

Although I started my new meds yesterday, I had a very rough night. My hands woke me up several times and I finally just gave up and got up and soaked them. so that is why I am on here blogging it keeps my fingers moving somewhat but still can be painful. I know the doc said the metho could take up two months before getting full relief but I was really hoping the predisone would help until then but so far no luck.Its so funny how life changes with RA simple things become hard things, someone who hates taking meds all of a sudden looks forward to it in prayer that they may receive somewhat of relief. I always say I don't think it would be as hard if I were not so young and a mommy of two small children. I mean I know the pain would be the same, but the mental distress would not be. I mean sometimes I feel like I am letting everyone down, I can't play with my children like I want and can't do things with my husband that I use too. But hoping this is all going to change with the meds. My goal in life is to be the best mother and wife I can be, I want my children to look back on their childhood with a smile full of memories and not a frown full of disappointments!!!

Friday, August 20, 2010

Day one of Metho

Today I started the new meds. for RA. I had to take 4 pills of methotrasate after eating my cereal then followed by drinking water. I am a little afraid of the meds just because of all the side effects and that the med was made for cancer patients. But I just want to be normal again, I love being a mommy and having RA has really made it hard on me. Things that I love to do like playing in the floor with them has became very hard for me, changing my babies diaper and dressing him extremely hard. I never would have imagined that this disease was this bad until having it myself. It has really made me view things differently but as for the meds as long as I take the folic acid on the days I dont take the metho I should not have problems with mouth sores and hair falling out. So I am thinking positive and hoping for great outcome.. God Bless